Seed distribution for The Big Sunflower Project 2017 has now come to an end, as the funding available to cover the administration costs of the project for this year has run out. Seeds are still available and the project will continue to send these to anyone willing to make a donation to cover the cost of stamps and envelopes. Please email for further information.

The Big Sunflower Project aims to raise awareness of the rare neuromuscular conditions known as centronuclear and myotubular myopathy by asking people to grow a sunflower.

On this website you can:

  • find out how to take part in the project
  • see where our sunflowers are being grown
  • learn how the project began
  • view photos and read stories from past projects
  • learn how to grow sunflowers and harvest sunflower seeds
  • read about centronuclear and myotubular myopathy
  • download documents to help raise awareness

Seed distribution for The Big Sunflower Project 2017 is now underway and will continue until around mid June or until our seed donations run out. The project welcomes participation from anyone. The only criteria for taking part, is that you are willing to have have a go and to share your photos and stories with the project.


11 thoughts on “About

  1. What a beautiful idea! I’ve emailed you to see if you would like to partner with us for our forthcoming art exhibition on Vincent Van Gogh, because we wanted to fill the railway station with sunflowers and have the art growing up out of them. It would be just wonderful to have your organisation’s aims promoted through our sunflowers to give it all an extra layer of meaning. Really hope we can work together on this touching project!

    Liked by 2 people

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